We're back at the hotel now. The evaluation and consultation were long, and there was SO much information. I took notes, but feel a little overwhelmed with it all. However, we both left there feeling hopeful.
Much of what they do at this clinic is based on genetic therapy. So, we won't know our exact treatment plan until they get the results of the genetic testing back later in the week. Wednesday, we'll have an MRI to see if there are any abnormalities in the brain (no jokes, please). And a PET scan to verify if there is any liver involvement, and to be used as a base-line for monitoring the progress (or, hopefully regress) as we proceed through treatment. Apparently it's not totally clear if the liver is involved. The Dr. said that it's very odd for gastric cancer to move into the bones without first affecting the soft tissues, specifically the liver. This could indicate a genetic abnormality, which they think they can treat with some of their genetic therapy. So, PLEASE pray that the liver is not involved.
Tomorrow, they will start Steve on a sodium phenylbutyrate treatment. This stimulates the genes that fight tumors. Due to the aggressive nature of Steve's cancer, they will also start him on an oral chemotherapy. And, depending on the outcome of the genetic testing, there may be some other treatments coming. Thursday, he'll start an amino acid/vitamin IV that will make him feel human again, according to the Doctor.
We should be here between 2 and 3 weeks. After that, we'll continue the treatments at home orally. About six weeks later, there will be another PET scan to monitor how things are going. The Doctor said that the aggressiveness indicates a fast metabolic rate which hopefully means that it will disperse the medication and respond to the therapy fast. So, the first one or two months will be key to measuring the effectiveness.
The financial aspect was a little overwhelming at first. We have a big lump sum due now, which the Lord has already provided through so many people's generosity. The continual, monthly costs are a little worrisome. But, Steve said that this morning, he again read Matthew 6, and was reminded that we're only ever told in scripture to ask for our daily bread. In fact, we're told specifically not to worry about tomorrow. God has ALWAYS been faithful to provide what we need, so we just rest in that.
Sorry this post is so lengthy. There's so much information to digest, I tried to just give you the highlights. Our specific prayer request for today is that the liver is NOT involved.
We were both a little nervous this morning before the appointment. But, several specific things reminded us to be thankful. And that brought peace. So, we say with the Psalmist, "It is good to praise the Lord!" (Psalm 92:1)
Thank you for lifting us up and taking care of us in so many ways.
Monday, August 4, 2008
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11 comments:
Stay strong and know that you have many people taking this to the Lord daily, on your behalf. I admire your srength and faithfulness.
Regards,
Jeff Cox and Family
We know your time is precious, so we read, we follow, we pray, without ceasing for healing. Thank You for taking the time to keep everyone current. We hang on EVERY word! Tonight we pray that his liver is not affected. And tommorrow we Thank God for his mercy for a brand new day. We look forward to the next uplifting update. In God's Grace, The Pace Family
There IS hope in the name of the Lord!
Love you!
Virginia <><
Thanks for the update. I pray for healing and help with fiances.
We love you guys!
Amber and the KW office
We are praying that the cancer is not in the liver. Dan was very encouraged with your report. He has seen what getting the right treatment did for his brother. You are not alone with the financial burden. We will help you. We love you and are praying for you constantly. Aunt Doris
I am praying for healing and finances right now.
No eye has seen, no ear has heard,
no mind has conceived what God has prepared for those who love him
1 Corinthians 2:9
We wait with hope and expectation for what He has prepared for you both. How blessed we are as your friends to be able to watch, praise, and pray. Thank you for the update.
We love you,
Rick and Dawn
Thank you for your daily report and for your continued witness to God's faithfulness.
Praying with you.
I Samuel 7:12 "The Lord is with us thus far."
Love,
Bettye
Hi Warrens- I'm a friend of Kenny's in NYC and just wanted you to know that we are praying for you here.
Thanks for sharing your journey with us,
Katy
We are praying.
Windahls
We don't know you but we are related through Jesus.
We will be praying for you on Wednesday night at Lake Pointe.
You all are an inspiration on this journey.
Randy and Carol Wolff
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